Rare Diseases

Rare and orphan diseases have a significant impact on both the sufferer and their loved ones. With many being inherited conditions there are often wider implications for the patient’s families to be considered. In the past treatments for these diseases have typically been to alleviate the symptoms of disease rather than the underlying cause. With the advent of the genomic era, real, transformative medicines are now becoming a reality for the first time with the prospect of patients and their children being freed from the devastating effects of these illnesses.

In areas that are often under researched, our real-world evidence provides insight into the burden of living with rare diseases, as well as the unmet needs of these  patients. We can establish healthcare resource utilisation to greater understand the societal impact that new transformative treatments may have.

Coronavirus (COVID-19)

As we deal with the current COVID-19 pandemic, we would like to assure you that Adelphi Group are taking every step to ensure the safety and wellbeing of all our staff, families, friends and communities. All staff worldwide are working from home and following individual Government Stay at Home guidelines to do all we can to Protect the Health Services and Save Lives. (UK : https://www.gov.uk/coronavirus) We will continue to exercise ‘Business as Usual’ to ensure our work for all continues. Indeed at the beginning of this month we held an extremely successful all work from home day to test our systems and ability to continue to communicate and deliver for whatever may happen in our world. Little did we know at the time how timely this was to be, and this will be an annual business continuity measure going forward. We would also like to share with you a programme ‘I AM PATIENT‘ produced by one of our Associate Companies, Snow, emphasising the importance of pro-actively following these critically important guidelines and to take personal responsibility to help stop the spread of this deadly virus https://www.youtube.com/watch?v=jZs-F2620CI #iampatient, #stayhome Stay Safe